For people with sensory overload after brain injury
The objectives can be divided into parts :
Bringing people together with brain injuries who suffer from sensory overstimulation, and those who live isolated - by stimulus sensitivity in brain injury and to form these people into a larger target group or make them a social relevance for development of products and / or (scientific) research.
To make the targetgroup and their issues known by the general public. In order that changes in society can follow , not only wheelchair friendly - but friendly to incentive!
Stimulating research (scientific- research or graduate) to the reduction of sensory overstimulation.
Gathering knowledge about the common characteristics and symptoms of sensory overstimulation.
To initiate residential project where people who suffer from sensory overload can live with 24/7 high quality care in a quiet surrounding. Nurses and staff are trained by us in knowledge about brain injury and brain injury consequences, and in sensory overload.
In the Netherlands our first project is about to launch.
Info picture: what is 'flooding'
We keep you informed here....
On Saturday June 23 2018, the International Day of Overstimulation will take place again. This special day was launched last year by our foundation to help raise awareness about the symptom of overstimulation that can occur after a brain injury.
With gladness we can announce the first International Awareness Day of FLOODING AFTER BRAIN INJURY on June 23rd.
We've started a Facebook group for persons with a brain injury who suffer from over stimulation /flooding:
We stopped the questionnaire that we used to collect solid statistics and hope that this can be used in scientific research. We also try to stimulate the development of tools against over stimulation.
Archive of older news...
We've got news...!
Tool against sound overstimulation
At the moment we are working hard to develop a product for sound overstimulation in order to contribute to a world in which everyone with brain injury suffering from overstimulation by sound can participate in public life again!
A team of (voluntary!) top engineers has been working incredibly hard since we met on a solution in the form of hardware and software. See the older neuws in ths post.
They do it for their friend with brain injury with sensory overload. We came in contact and our goals are the same... we could give them all of our knowledge so far and from there on we are working together for the whole peergroup. In february of this year knowledge was shared form the hearingcompany that we we have been working with, with the new techniciens.
The scientific study in the Netherlands has finished that studied the effects of being able or not to have a conversation in noisy surrounding (background sounds) for people with brain injury. The Dutch brain injury patients who applied here on this site were welcomed te take part in that study. We expect the results of this study in April 2016. At that moment we will publish the results here too.
In the meanwhile, we as team Brain injury explanation are in the progress of developing our own tool...for it takes too long for the industry to come with an solution. Do you want us to keep you informed? Contact us! Stay hopefull.! Merry Christmas and a very happy better (healthy) New Year!
We approached several other patient groups and we will work together to develop a tool. We expect it to be developed in one year. In the meanwhile the hearing aid company tries to do some changes in their product. For the first time we are really hopeful that this will going to help the whole peergroup.
We've found a few Dutch techniciens who might be able to help us out! They are personally involved with ABI, because of their friend with sensory overload. Their compassion for him, can move mountains, we hope for the benefit of all of the people with ABI.
We are testing another hearing aid together with build in mics. This test shows: There is noticeably less noise , but there is still some adjustments to do by the manufacturer. It is still too noisy!!! Keep up the spirit...
We contacted Doppler labs for their Here Active Listening System, that can filter out noise. They claim:
"Through two truly wireless, in-ear buds and a smartphone app, Here allows you to instantly control real world audio so you can hear what you want to hear and be fully immersed in your audio environment."
So we asked them to let us test this in the future, with human voices, and keep us in mind with developping, because all over the world a huge amount of brain injured are waiting for this solution.
Their answer: The scenario you describe is definitely something that we'd like to eventually help solve with the Here Active Listening System, but differentiating between different human voices is a really tough signal processing challenge.
While the initial release of Here may help somewhat, we are aiming to solve that problem more fully in future software updates.....
So we wait and wait and waited and than realized that we ourselves must develop such a smart aid that filter out background noises.....do you want to be informed of our progress? Please sign up!
Unfortunately the test did not work out as we'd hoped. A hearing aid is enforcing backgroundsignals too, where we want to mute background signals. The angle of the directional mic must be smaller.
Finally the first testingsets are delivered , now we can test out with 5 persons, all with traumatic brain injury.
We have contact with two big hearing aid companies, with the question to test their existing products with brain injuried persons, contacts of ours by our Project flooding.
Video // Flooding
Becoming Overwhelmed After Brain Injury
Many brain injury victims experience sensory overload of the brain and by cognitive and emotional 'flooding'. By:
feeling, to be touched, moved or vibrations are felt
multitude what is said or asked
In overstimulation panic feeling can take possession of the brain-injured. Someone may be sweating, have tremors, vomiting, and thinking is difficult.
These are the basic reactions of the body to survive in a situation that is perceived as very dangerous. It is also called the fight or flight response. The one man shall flee from the overstimulation of the noise or stimulus of the moment. The other man will be out of impotence. Most of them are very upset first.
The basic emotion of fear and the ensuing responses are generated and directed by the amygdala. The amygdala is part of the oldest part of the brains, the limbic system. This system is a kind of emotional sentry. All that matters is survival. If there is danger, directly adrenaline, noradrenaline and cortisol are released into the body to flight, fight or freeze.
At the same time, the neo-cortex also called the rational mind will stop the mind from thinking. Because, after all, in threatening situations lacking the time to decide what the best plan of action will be.
A rapid response of the amygdala thus ensures that we can avoid the danger before we realize that we find ourselves in such a situation.
By over stimulation people are no longer able to rationally deal with the situation. Fear prevails and the amygdala creates a fight-flight-or freeze reaction. But our statistics prove that people after a while learn how to cope with fear that in the beginning comes along with flooding.
It is often said that it is all in your head
Unfortunately flooding /sensory over stimulation can't be seen, unless sometimes in some individuals signs like sweating or a red head...or people think that you are in panic. For it reminds them in a way of that.
It is not like in a Hollywood movie where victims of brain injury are knocked out and lay the rest of their life in a bed on machines.
If you are not believed by your family or insurance company or co-workers you cannot convince them. Perhaps facts sheets can...they only have to read them.
Perhaps this site and www.braininjury-explanation.com will convince them that a lot of effects of acquired brain injury are invisible.
Questionnaire /poll for research sensory overload after brain injury
Thank you all for filling out he survey;
the questionnaire about flooding /over stimulation from the senses.
We are working to get insight in all these statistics and hope to let it result in a good investigation.